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Re: sjrogrens syndrome
Posted by Marian on 10/03/08
On 8/01/06, Carolyn wrote:
> On 6/06/06, Shalaney wrote:
>> On 8/07/03, Ellen wrote:
>>> On 10/18/02, meg wrote:
>>>> Does anyone have any information on Sjrogrens syndrome?
>>>> Cheers
>>>> Meg
>>> I have been taking a fairly new medicine called Evoxac. It
>>> really helps dry mouth and has worked wonders for me.
>>> Good luck
>> Does anyone know the levels of sjrogrens disease. What is
>> considered normal??? Thanks Sh
> If I am understanding your question right, The effect that
> sjrogrens can have on an individual can vary quite a bit. I have
> been battling this for quite sometime and I can tell you
> that "dry mouth" is the least of my problems. This has totally
> kicked me in the butt and I have had to cut my work load in half
> and still fight to make it thru each day.
I have had SS for over 5 years....dry eyes and mouth in the very
least of the worries....I have episode of major fatigue....it comes
and goes, mostly comes!! I am on the Evoxac...it helps some. The
more water I drink the drier my mouth gets "Cotton Mouth", it
really is bothersome at times. I have a very hard time getting
enough rest, I am always tired. Body aches are constant...I have
the feeling of heavy muscles...or over worked muscles. Joints
ache, but might be the Rhuematoid Arthritis kicking in too! Whhat
do you want to know about the SS? The internet provides plenty of
info..other that I don't think people realize how severe the SS can
get. There are some days I don't think I can make it, but I have
to push....and push hard! There are very few days I feel
great....it sucks because I am only 35 years old.
Posts on this thread, including this one
- sjrogrens syndrome, 10/18/02, by meg.
- Re: sjrogrens syndrome, 8/07/03, by Ellen.
- Re: sjrogrens syndrome, 8/07/03, by Ellen.
- Re: sjrogrens syndrome, 6/06/06, by Shalaney.
- Re: sjrogrens syndrome, 8/01/06, by Carolyn.
- Re: sjrogrens syndrome, 10/03/08, by Marian.
- Re: sjrogrens syndrome, 5/27/09, by Debbie.

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